Just call me the loopy Lupus lady...
So yesterday I met with my doctor and he agreed with my Rhumatologist that Lupus seems to be what I'm dealing with. He gave me some pain pills which I was hesitant to take, but they're supposed to be better for me then the Alive I've been taking most days and he had a letter from my rhumatologist who was suggesting that for me too. He also gave me some skin antibiotics that are supposed to be more heavy duty then the over the counter kind. It's kinda gross, but I've had these moles on my neck as long as I can ever remember and this last week one of them just decided to split open and get infected. That's what I deal with these days. When I catch the same cold as others I'm out for weeks when they're out for days, I get a cut or scrap and it gets infected. But looking at it through the eyes of starting to understand Lupus it all is starting to make sense. I'm not unfamilular with this process in understanding health issues because I dealt with a simular thing when I was diagnosed with PCOS. From what my doctors can tell the two don't seem to be related. There are a few ways they could be, but it's very slim. I just happen to be someone who has both. And the strangest thing is they are both considered "orphan diseases" meaning they're rare and hard to diagnose, and now I'm looking at having been diagnosed with two, its just kind of weird to me.
So yesterday was quite the roller coaster. During the morning I kept hitting time black holes or something. I'd look at the clock, think 5 minutes passed and look at the clock again and it would be 45 minutes later. Amazingly I still made it to getting the car to the shop for an oil change and some brake job. I walked from the auto shop to my doctors office and it felt nice, the weather was so nice. It wasn't too hot, but it was sunny and clear.
After the doctors appointment I walked to 7-11 and got some water and nachos. Not a great choice, but I needed to snack on something. As I sat at a nerby table I could feel eyeballs watching me. It really made me self concious about eating in public. Then this stupid jerk shouted out at me, "Hey Shamoo!" I didn't move. I was livid and insulted, but I didn't make any outward acknowledgment. Their light changed and they drove on, but it just really ticked me off. I ended up tossing half my chips (they were too salty anyway) and I walked on to the bookstore and waited for Kevin to come get me since we're leaving the car at the shop. The comment really didn't make me mad because of me, but because I had such a hard time believing someone so stupid actually could exist! I feel sorry for them and I kept thinking about how they just weren't raised right.
After all that happened we stopped in Monroe to get some dinner and while I was in the parkinglot my wallet fell out of my pocket. I never put my wallet in my pocket for that very reason, but yesterday I did. I came home to hear a message from a good Samaritan who had found my wallet and wanted to know where to meet me to return it to me. It just seemed kind of strange to me that I'd see such a jerk of a person and such a kind soul all in one day. And all on the same day that I started getting some important confirmation about my health.
So yesterday used up all my spoons, and I think I ended up borrowing against today's spoons, which with having walked approximately 7 blocks I'm not too surprised. I'm just going to kick back today, read my new book and watch the news.
I'll know more next week after I meet with my Rhumatologist again. I look forward to making an action plan with her as to what I need to take and what I need to avoid. I thank all of you for your loving words and prayers, it means so much to me. Thank you!
I've been trying to see if anyone else has both or if anyone has noted any connections...the only thing I've found has been this conversation.
So yesterday was quite the roller coaster. During the morning I kept hitting time black holes or something. I'd look at the clock, think 5 minutes passed and look at the clock again and it would be 45 minutes later. Amazingly I still made it to getting the car to the shop for an oil change and some brake job. I walked from the auto shop to my doctors office and it felt nice, the weather was so nice. It wasn't too hot, but it was sunny and clear.
After the doctors appointment I walked to 7-11 and got some water and nachos. Not a great choice, but I needed to snack on something. As I sat at a nerby table I could feel eyeballs watching me. It really made me self concious about eating in public. Then this stupid jerk shouted out at me, "Hey Shamoo!" I didn't move. I was livid and insulted, but I didn't make any outward acknowledgment. Their light changed and they drove on, but it just really ticked me off. I ended up tossing half my chips (they were too salty anyway) and I walked on to the bookstore and waited for Kevin to come get me since we're leaving the car at the shop. The comment really didn't make me mad because of me, but because I had such a hard time believing someone so stupid actually could exist! I feel sorry for them and I kept thinking about how they just weren't raised right.
After all that happened we stopped in Monroe to get some dinner and while I was in the parkinglot my wallet fell out of my pocket. I never put my wallet in my pocket for that very reason, but yesterday I did. I came home to hear a message from a good Samaritan who had found my wallet and wanted to know where to meet me to return it to me. It just seemed kind of strange to me that I'd see such a jerk of a person and such a kind soul all in one day. And all on the same day that I started getting some important confirmation about my health.
So yesterday used up all my spoons, and I think I ended up borrowing against today's spoons, which with having walked approximately 7 blocks I'm not too surprised. I'm just going to kick back today, read my new book and watch the news.
I'll know more next week after I meet with my Rhumatologist again. I look forward to making an action plan with her as to what I need to take and what I need to avoid. I thank all of you for your loving words and prayers, it means so much to me. Thank you!
I've been trying to see if anyone else has both or if anyone has noted any connections...the only thing I've found has been this conversation.
Labels: auto immune, inflammation, PCOS, Rheumatoid Arthritis














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