Three titles could go here.

I couldn't decide if I should focus on finding out about PCOS issues from my rheumatologist, or if I should focus on knowing that as far as my RA meds go, I've had them out of me enough to TTC, now I need to get my inflammation levels DOWN, something I've been struggling for ever since I started being treated for arthritis. BUT! WONDERFUL NEWS! I don't have to scrimp and save and only use Voltaren when I'm beyond desperate anymore. See, I was introduced to it several years ago when I was in Czech and found it to work for me amazingly well. My dear grandma has kindly provided me with tubes which I try to conserve, but wish I could have it as a regular prescription here. Well, after years of waiting the FDA finally released the cream form for use here in the states! YAY! My NP and MD said I'm the first to get it from them, they gave me a trial tube, so now I'm keeping one in my purse, and they gave me a generous prescription for this wonder cream! I went to get it filled and the pharmacist told me I was the first person he's filled it for and that the pharmacy only had one tube, so I'd have to come back in a day or so for the second tube I was supposed to get. But all this made me feel cool! FINALLY! I know this stuff works for me, so hopefully between that, and having a more rigid schedule with my oral anti-inflammatory meds I can get my sed rate down enough to get the go ahead from my RA MD to call the GYN MD and make the plans to TTC. It's feeling better! There is some hope here! At least from the RA end.



Now, as far as my arthritis goes, the Osteoarthritis in my hips is so minimal it shouldn't interfere with a pregnancy, my hips should still be able to handle it all. As far as the results that the SI joints looked fine on the MRI scans, the doctor, nurse and I all agree that it doesn't rule out spondylorathropy because of the symptoms I have, and that it's very common for nothing to show for the first couple years. And that also makes sense because when we first checked my hips we saw nothing, and then recently the OA was visible. I've read this to be common for many others on various blogs and message boards too.

The MRI results were even more of a mixed bag than I thought by reading the letter I received initially. So we still suspect Rheumatoid Spondylitis, found out additionally about OA, AND with talking with the nurse they found cysts on my ovaries. So I'm sure the gynecologist will want those to clear up first, or they may prevent my cycles from happening properly enough to TTC. I was slightly crushed to know the MRI inadvertently showed cysts, but not surprised, I mean it is a part of poly cystic ovary syndrome, and I've known I've had that for years. I guess now I need to pray that my hormones will improve. I know it's keeping my depression active, as well as making my blood sugar fluctuate a lot. I haven't been tolerating my full dose of metphormine so I haven't been taking as much as I'm prescribed, but it looks now that I need to suck up the unpleasantness and go back to the full dose so I can get my PCOS better under control. It all seemed interesting to be talking about that at the RA office. But I felt like my nurse and doctor were knowledgeable enough to treat me well then.

The visit there was over an hour! The nurse is a new one, the gal I was working with isn't there anymore it seems, and the new nurse seems to be just as good in my opinion. She took time to get all the details I could give her, and she gave me a wealth of information! I ended up visiting with the doctor as well in regards to the whole TTC while on certain meds issue. We're hoping that if I can get my inflammation down again that I can also get off the bio-logic injections, they can cause birth defect. So if the time comes that the Gyn gives the go ahead to TTC but my sed. rate is still too high I'll have to go back on prednisone. We're all hoping that I wouldn't need to, I gained 20 pounds the last time. I was able to loose it all after I was off it, but to gain weight while pregnant wouldn't be healthy either. Basically the issue is that if my total body inflammation continues to be an issue, my body stress would effect the growing babies body stress too, and that wouldn't be good. So, in the mean time I have my new cream, new plan on how to take my current meds, and referrals for both an orthopedic doc and physical therapist. I was bummed to find out the physical therapist in town doesn't take my insurance anymore, so hopefully there is someone in the next town that can or I'll be stuck driving to the city (Everett) for treatments.

OK, to recap...

* I still probably have diagnosis of Rheumatoid Spondylitis.
* I also have rheumatoid arthritis.
* I also have osteoarthritis.
* I also have cysts actively on my ovaries.

What a mixed bag. I pray the cysts pass on their own without issue. The one time I had one rupture it was so painful I finished the bottle of Vicoden from when I had oral work done. If any of these cysts decide to rupture, I'll be headed to the ER in the next town at the general hospital, I don't like that, they didn't take care of my father in law in a timely manner when we took him there a few years ago. He was/is fine, but we were put off by how slow it was. I guess it's the trade off of living out in the country. I do wonder if I'd really need the ER if the same as last time were to happen. I'd probably be OK to wait for daytime and go to the urgent care near Kevin's work, our doctor is there, but they don't have all the same resources. Well, I don't need to plan a course of action here, it's not always true that they rupture, the body can amazingly absorb them pretty well too, so I'm hoping that'll just be the more pleasant case. None of the cysts are so big as to require surgery (at least for now), for that I am grateful.

I was sent to get my hands x-rayed to make sure my RA isn't causing any damage there still. And with the visit taking over an hour it ended up being lunchtime when I was done there. Where all the medical places are in Bellevue there is only a Burger King and Whole Foods. I didn't want junk for lunch so I went to Whole Foods. OH MY GOODNESS! It is so expensive! I mean I've shopped at Whole Foods before, but it's been a while since that is the closest one and it's about an hour away. Anyway, 30 some dollars later and I had lunch, a couple reusable shopping bags and a reusable feminine pad, something I've been thinking of trying. I LOVE the shopping bags! We've been buying the reusable ones when we can because we're sick of always having to get rid of plastic bags, but we've found that the reusable ones that most stores sell end up starting to bust the seams after a few uses. I have several sitting by the sewing machine waiting for me to mend them. Anyway, the large ones I got from Whole Foods seem VERY sturdy, they're made with two layers of material so I think that will help too! I bought two bags, maybe in a few weeks at my next visit I'll pick up a few more.

I ended up being out so long that after I got my x-rays done it was almost time for Kevin to get off work. I called him, he called his car-pool buddy and I ended up being the one to give him a ride home. I sat in the parking lot at his work for about half an hour, which I totally loved. The day turned out so nice. It was cooling off as high clouds were rolling in, with the faintest amount of rain, and the birds were flying around and singing, I just sat and took it all in while I waited. It felt like such a blessed time of peace, a real gift from God, just for me!

After I picked Kevin up we went grocery shopping and home and dinner and bed, so I didn't get to work on my crafty things yet, but Tuesday is looking pretty calm so I think I'll work on things in the morning. I'll also check the veg starts and see if they revived from the rain after the heat, I know I did. If so I'll tend to them.

Well, I've had very little sleep lately, so I'll end here for now. I know I wrote a lot of abbreviations. But I think I covered them all in context, drop me a comment if something was confusing. Writing at 3 in the morning doesn't make me the most coherent.

So to recap, please pray about my cysts, right now those are going to be my biggest hurdle with trying to conceive. Please pray that I'll get my inflammation down enough, gain more mobility again, and that physical therapy will prove to be of help. It'll still be about 4 months according to the doctor before I'd expect to be able to move as freely again. It'll take time for physio to work. We hope that the OA won't continue to worsen and stay relatively about the same as it is now.

Well, I think I got out everything I needed to write about from the day. I'll head back to bed. I was sleeping well until the cat started to climb the screen so I had to wake up to kick him out of the bedroom. That woke me up enough to want water, and then the day started rattling in my brain so I thought I'd just get up and share, but now I'm ready to go back to bed.

Good night friends, and please pray with me. Thanks!