A Perplexing Journey

I blog about; life with my loving husband, & our cats Siggy, and Maddie. Stuff in the news, my crafts, memes, photo posts & various other things that catch my fancy. I really like working at home, my husband appreciates my roll as housewife, and I find it my most rewarding job yet. We still hope to have children, though we still don't have any yet.

Wednesday, September 10, 2008

Pain causing pain - considering Cymbalta.

Right now I'm dealing with my pain (lack of management) causing my depression to spiral deeper and the two keep feeding off of each other. On Sunday I couldn't get out of bed. My sleep has been completely disrupted, getting a few hours here and there, any time day or night, and feeling like a zombie the rest of the time. I will make an appointment with my Rheumatologist once I can get past how foggy I am right now. I'm going to ask if I need to add Cymbalta to my medications since I haven't been able to take Prozac in a while and not medicating my depression is starting to take it's toll on me again. The last time I was treating it was last summer while Tony cat was sick and I continued a couple months after he passed away, but eventually the dizzy spells and migraines from it became too much so I just stopped. I know I shouldn't have, that I should have asked a doc to switch me, but I'm so sick of appointments I've just been avoiding some because I feel like going to appointments would become a full time job right now if I did, I'm already out of the house for physical therapy twice a week right now, and that's taxing.

Anyway, from what I keep reading, Cymbalta is the anti-depressive of choice for those with chronic physical pain issues and depression too.

The majority of my pain is in my back these days. I think physical therapy is working well for my hips, but that my back is either getting worse or is more noticeable with the hips not being as much of an issue. The back pain is keeping me from sleep. I feel like someone kicked me in the back and now it's all achey and stiff. Or like I have a lead pipe around my spine. I'm suffering limited balance and limited range of motion and I'm find myself leaning on counters and using my cane more even though my hips are a bit better. (Bursitis anyway, still dealing with Osteoarthritis and labral tears there, that only changes with surgery.)

Because this makes sleeping impossible, the lack of reparative rest makes my head foggy, pain more intense, and depression worst. The following is something I found because I was wondering what, if any, information might be out there in regards to A.S./R.A. and depression. I found that, like a lot of other forms of depression women are effected more than men. Kind of interesting that they could monitor that considering males are diagnosed with A.S. more than women, but according to the Spondylitis Association of America those statistics are changing.

Here is what I read;

Wiley InterScience
Depression has been established as a common reaction to rheumatoid arthritis but has rarely been investigated among people with other forms of arthritis. The present study examined the prevalence and determinants of depressive symptoms in people with ankylosing spondylitis, focusing on gender differences and set in the context of widely held medical views concerning the psychosocial nature of ankylosing spondylitis patients. Results showed that approximately one third of the ankylosing spondylitis patients reported a high level of depressive symptoms and that women reported more depression than men. No evidence was found to support the stereotype of the typical ankylosing spondylitis patient as being less depressed than people with other forms of arthritis. Pain was found to be a major determinant of depression for women, but was of lesser importance for men.
Depression in Women - Spondylitis Association of America;
People with chronic diseases are more prone to develop major depression. In fact, a British study showed that 37% of people with spondylitis suffer at least one bout of depression during a lifetime. Fortunately, more than 80 percent of people with depression can be treated successfully with medication, psychotherapy or a combination of both.

Women experience depression at roughly twice the rate of men, although it is an illness that affects both sexes. Contrary to popular belief, depression is not a "normal part of being a woman" nor is it a "female weakness". Researchers continue to explore how issues unique to women may contribute to the increased rate of depression. Such issues include reproductive, hormonal, genetic or other biological factors; abuse and oppression; interpersonal factors; and certain psychological and personality characteristics.

About one in every eight women can expect to develop clinical depression during their lifetime. Depression occurs most frequently in women aged 25 to 44 (Note: when a women is most likely to begin feeling the symptoms of spondylitis), and depression in women is misdiagnosed approximately 30 to 50 percent of the time.


So all this being said, I'm trying to get out of my fog. Finish up my physical therapy in the next couple weeks, and make an appointment with my Rheumatologist to find out what my next step is with physical therapy, and to see about adding Cymbalta. Most likely I'll need a new script for physical therapy to this time work on my back. I also need to remember to get a new referral for an orthopedic surgeon. I had one in my purse, but I took it out when we went to California because I didn't want to loose it, and here I've gone and lost it! I've looked all over and just haven't been able to find it! A lot feels chaotic these days. So disorganized and frustrating. I'm hoping things will get better soon though.

I'm really just making this post to remind myself of all these things, to keep track of the information I've found and to remind me to share it at my next appointment. I'll be OK, I've pulled out of issues like this before.

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5 Comments:

Blogger Sondra said...

I am finally back online! I am so sorry to read that you are not feeling much better. I was hoping to find some good news from you. I will keep you in my prayers and hope that maybe the new drug will be of some help to you.

September 10, 2008 6:15:00 PM PDT  
Blogger Mica said...

sounds like you have a lot going on. We can handle everything else here for Saturday. Don't worry about coming by. You need to take a break with all your pain. There won't be much left to do anyway. I will have a check for the money I owe you on Sunday. I am leaving maybe early morning Monday if all looks ready for my movers if not I am for sure leaving early morning Tuesday. Sorry we didn't have time to visit. I had to deal with my packing. Thank God for the few who came to help me this week. See ya on Sunday if you make it to church. Love ya, Mica

September 11, 2008 7:32:00 PM PDT  
Anonymous Anonymous said...

I was doing some searching about AS for a friend because her 15 year old daughter has been diagnosed with it. I have to say, I feel terrible for what you are going through. It sounds horrible. However, here is my 2 cnets worth, please consider, corrective chiropractic care (not pain management) get several opinions and look into how miraculous it can be for infertility. #2 read the book "the Secret", you are wallowing in you "story". This is not who you are, move past it and get on with what your life can be. #3 Change your diet drastically and look for "healing diets" that will reduce inflammation and put you on a healing course. Do not look at more drugs as the answer. They are your enemy and are cuasing you more pain than you know. Good luck and keep up your good work.
Jennifer

September 15, 2008 7:18:00 PM PDT  
Blogger Celestial Freak said...

To the Anonymous Jennifer,

Do I even know you?

1. I've been studying A.S. for a while now because of the symptoms I have and because of the things I want to improve about myself. This is a degenerative disease, meaning my body is trans-morphing and changing in ways that are not right. This inflammation can lead to new bone formation on the spine. As a result people with AS are NOT to have chiropractic care as it tends to break the spine (in these patients) and can cause PARALYSIS!
Massage therapy is suggested, and I do intend to refill this prescription.

2. As for anti-depressives, I've said in previous posts on here that I did explore the natural route first, it did nothing, and st. john's wart makes me sick to my stomach such that I can't eat. I tried various versions, for me a complete waste of money! Chemical and hormonal depression is a real and medically treatable symptom. It's something I've been working with my doctors for years.

As a person who suffers from multiple chronic illnesses I know the need for finding the right diagnosis and finding the right medications for treating my issues. Because there are so many things out there, and because everyone's bodies respond differently this is a process to find what treatments work best.

3. Drugs are not 'the enemy' as you say. If I didn't have Embril I'd be in complete pain and laying lifelessly in bed, which I was. As it is I'm improving my mobility, along with physical therapy. I now am able to and will walk in the Arthritis Foundation's walk next month. What a victory!? Drugs and modern medicine has gotten me this far and I trust it will continue to help more!

4. As for the book recommendation, I looked the book up on Amazon. It should be obvious by my blog that I am a devoted Christian, therefore I am NOT going to be using any new age occult self help book.

5. This life is full of happy and sad, good and evil, right and wrong... that being said in our lives we have to deal with various things, and if we don't deal with them they become bigger problems the more we ignore them! I refuse to ignore my problems of arthritis and infertility, and I will continue to share what I learn and what I go through because it's good for other humans to understand that this life has suffering, that some suffer more than others, and that there are many ways of taking care of ones-self.

This blog, while public, is a candid and personal reflection of my life and journey with these issues. You don't have these issues so please don't come on here leaving me a comment like you know what I need to do or what I am truly dealing with! You simply don't know, and unless you lived it could never fully understand! I've been researching for years everything I can read about my infertility and my auto-immune disorder. These issues are genetic and not able to be cured or reversed by a diet, new age book, or chiropractic care. They take modern medicine, surgery, prayer, understanding and loving friends, but not unsolicited, un-researched, or misguided advice.

What I take particular offense with is the audacity that my issues are something I need to "move past (it) and get on with (what your) life (can be)" You wouldn't tell someone dying of cancer to just get over it and be better, so why would you so callously expect someone with such complex issues to be able to just will it away?! Believe me, if it was that simple I would have long time ago!

Cymbalta is not pain=killers, and it's extremely rare that I even take any pain killers. Cymbalta is an anti-depressive, which has been found to be beneficial for people who suffer long term pain and depression. Currently I take disease modifying injections and anti-inflammatory medications, as well as heaps of ginger in my diet, and Tiger Balm ointment to get it on the outside too. I repeat Cymbalta is nt a pain-killer, and I rarely ever take pain-killers!

As for the friends daughter, here is a good link to start from to understand things...

http://www.spondylitis.org/about/juvenile.aspx

September 16, 2008 11:15:00 PM PDT  
Blogger Dana said...

hey...
first off. Your comment concering Anonymous Jennifer.... AMEN! She has no idea what you go through. Not only that, the secret is a bunch of new age crap that Oprah tried to tell the world was perfect. I think its annoying when people think they know it all, come to YOUR space and tell you how to live. Sorry to rant on your blog, but her comment bugged me. You are doing a good job of not being stuck in your disease and yet dealing with it head on. Dont let some know-it-all make you feel bad!!! (wallowing.. like she would know what you do on a daily basis to know if you were wallowing).

September 17, 2008 4:54:00 PM PDT  

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