(Update at bottom of post.)
The following seemed fitting that I read it today on a day were I napped as much as I was awake, am feeling agitated about everything, gritting my teeth from back pain, and feeling bad that I haven't blogged in several days, and feeling like it means something bad about me that I can't think of anything fun to do or blog about when I feel this low.
I'm never one to want help, or to want to talk when I don't feel good. I'll just say I'm OK and act invisible when I feel like this. The times I have shared how I truly feel makes me feel disconnected with others and I'm acutely aware of just how many people seem to think I invent this back pain.
If I could give it up and have happy things to blog or talk about I'd give it up in a heart beat. I'm not one who wants to feel sorry for me, or looking for attention, but it does become a burden to deal day in and day out with these things and not tell anyone about it. So then I explode rants on here and probably become the opposite of what I'd hope.
Well, here is the quoted post. I'll reply more after the block quote. (and the link for this post is at the end.)
Most people don’t want to be around a chronic complainer. You know the one that shows up at the family picnic. You see her coming and everyone starts disappearing, but wait you couldn’t get away from dear old Aunt Bertha. So you endure the conversation, wondering when she’ll ever quit whining about Uncle Harold’s snoring and Aunt Beth’s teeth. You sit there for the 30 minutes wondering when you will find your out.
While writing this it got me to thinking, where do I rank on the complainer score sheet? Yeah, it’s hard not to complain when life seems to suck when you’re in a lupus flare, and the pain never seems to end. You wake up and if its not one thing hurting it’s another new symptom.
I’m challenging myself not to complain as much about living with lupus and pain, even if it does suck. After all everyone one around me knows I have lupus. It’s not like you can’t figure out when I’m in pain. I’m not very good at hiding it, although I have tried to hide it. I won’t say that I will not complain about living with lupus by no means.
Here’s my thinking, if I don’t complain as much, maybe I won’t be constantly reminded of how much I hate lupus. Yeah, it’s given me some positives, but the negative ones outweigh the positive ones. (that’s another post-tba)
So I’m going to ask you to try this test:
Find yourself a pen and paper and write down all your complaints for the day.
Look at each one and think how you could possibly reduce the amount of complaining you do in a day. Is the complaint something you could fix? Is the complaint something you have been avoiding doing? (get it done, so you can check it off your list).
So, the next time you complain about something find something that you can compliment. You see the compliment is good for the receiver and for the giver. You both should come out feeling O’ so good.
Now, if after reading that you want to go to that blog and leave a comment the link for it is here.So, after reading that I became aware that there is a BIG difference to someone dealing with chronic issues verses someone who is never happy with those around them. It probably comes off as the same to most people hearing it all, but personally I have a much easier time hearing someone share with me their own personal physical battles, much more then hearing about how mean one family member has been to another or other mean-spirited gossip like that.
These days my good days tend to be filled with catching up. I got behind on so many parts of life after our last trip, and then we had a flu bug, and this last flare up in my back has lasted almost two weeks, with only a break this last saturday (Which was nice because my best friend and I just spent the day hanging out and shopping and having a lovely day.)
I don't want to write about the mountain of dishes in the sink, or how my poor plants are suffering because they aren't in the ground yet, and the many other things around that really need my attention. But the reality of my life is I still haven't been able to get around to them. I want to, I'm not being lazy, and I'm constantly doing something when I am able to move. I need help, but I don't know who to ask, or what to ask, I'm at a loss. And I hate needing help.
I got around to refilling the cat's food, and water dispensers, as well as adding new water to the fish tank, and then I needed to rest. Now, our filtered water does need to be pumped, so there is actually quite a bit of work to it, but it bummed me out because I had hoped to get so much more done before I needed a break again.
I miss the days of only having a handful of doctors appointments a year. These days I have so many. It becomes really tiring. I've had this list of appointments I need to schedule that has grown over the last couple weeks and it just brings me down. I don't want to have to spend any time I leave the house being only doctor appointments, but that's how things are turning out.
Now personally, what I read in blogs and message boards ends up sounding, often a lot like this post. But I've noticed that of those posts I read and relate to they are very often on blogs only for those issues. The name of my blog "Crystal's randomness" reflects this about me, I think, that I never blog about only one thing. I've tried keeping a specific and separate arthritis blog, but it never seems to go anywhere. And then there are times when I try that and I spend days blogging only to make it seem like I've fallen off the blogosphere here. So to me the balance seems to be to really only maintain one blog, and try to keep the tags on the posts separating thing. I can click a tag and poof I'm taken to just my posts on a specific topic, and to me that works just fine. But all this got me to wondering if the other blogs are people who are too afraid to come off as complaining. I mean in a lot of these places, only people in the same boat are reading them, so aside from empathy, I'm not sure what more there is. I'm not saying it's wrong, but it doesn't seem so complete to me. Personally, this blog is obviously personal and a reflection of me. So why not reflect all the aspects of me. If you're reading this far, you probably are a good friend who cares about me, or family who wants to know I'm well. Well, to be honest, well isn't something I've felt long term in quite some time. I have hope that for various reasons down the road things will improve, but right now this is me. So do I hide it under the rug of a different blog, or not share it at all? Or do I suck it up and say "Hey friends, here is what I'm honestly dealing with."?
I know different people would read this all and react in different ways, some might pray for me, others might become over concerned and call and tell me they "know I'll be just fine, and can get over it." I can't tell what's right and what's not. I just know that if I don't say what I'm dealing with I get this sense that people do think I'm lazy, or boring, or avoiding them, and it's just not true. I know some out there will see this as another one of "those" posts and just skim it if they even read it at all. But what can I say, at least I'm putting something out there. Right? I am communicating.
Here is my latest to do list.

It's only the crucial items written down, so it doesn't mention the regular things like dishes and laundry that I mentioned earlier. Right in the middle of my chicken scratch you can read the list of all the appointments I'm supposed to make right now. I really do think I'll try to at least make some of the calls tomorrow. But most days lately, I don't remember to think about it until after office hours have ended for the day.
So all this has me wondering... and maybe this is all this post is really about... how much of "being honest" comes off as just as bad as a mean spirited gossip, and how much is seen as an honest reflection of the trials of a person with chronic illness?
(UPDATE:)
I actually feel rather convicted that a difference needs to be addressed here. So I thought I'd look to scripture a bit. Here are a few things that caught my eye.
Ephesians 4:25-32
25Therefore each of you must put off falsehood and speak truthfully to his neighbor, for we are all members of one body. 26"In your anger do not sin"[d]: Do not let the sun go down while you are still angry, 27and do not give the devil a foothold. 28He who has been stealing must steal no longer, but must work, doing something useful with his own hands, that he may have something to share with those in need.
29Do not let any unwholesome talk come out of your mouths, but only what is helpful for building others up according to their needs, that it may benefit those who listen. 30And do not grieve the Holy Spirit of God, with whom you were sealed for the day of redemption. 31Get rid of all bitterness, rage and anger, brawling and slander, along with every form of malice. 32Be kind and compassionate to one another, forgiving each other, just as in Christ God forgave you.
Ephesians 4:11-13
11It was he who gave some to be apostles, some to be prophets, some to be evangelists, and some to be pastors and teachers, 12to prepare God's people for works of service, so that the body of Christ may be built up 13until we all reach unity in the faith and in the knowledge of the Son of God and become mature, attaining to the whole measure of the fullness of Christ.
So, in response to these scriptures I sense that we are to be aware of the needs of others, and in doing so we need to be able to expect of one another an open honesty of what our needs are. If I keep my needs to myself I stop others from serving me in ways they may be called for, and vice versa. It takes an open and honest two way acceptance that life isn't pretty in order to get past feeling like it's impolite to talk about the bummer parts of life, or to be open enough to listen to others needs, but Christ calls us to this. We are to serve one another. My needs may be physical, someone else's needs may be emotional, but when we come together in open honesty and talk about how things are, we can bond together and help each other out. I think this is the greatest gift a church has to each other, but often one that out of "politeness" is cast aside and not dealt with.
Romans 12:1-2
1Therefore, I urge you, brothers, in view of God's mercy, to offer your bodies as living sacrifices, holy and pleasing to God—this is your spiritual[a] act of worship. 2Do not conform any longer to the pattern of this world, but be transformed by the renewing of your mind. Then you will be able to test and approve what God's will is—his good, pleasing and perfect will.
Romans 12:4-6
4Just as each of us has one body with many members, and these members do not all have the same function, 5so in Christ we who are many form one body, and each member belongs to all the others. 6We have different gifts, according to the grace given us. If a man's gift is prophesying, let him use it in proportion to his[a]faith.
Romans12:9-13
9Love must be sincere. Hate what is evil; cling to what is good. 10Be devoted to one another in brotherly love. Honor one another above yourselves. 11Never be lacking in zeal, but keep your spiritual fervor, serving the Lord. 12Be joyful in hope, patient in affliction, faithful in prayer. 13Share with God's people who are in need. Practice hospitality.
I hope these verses further flesh out some of what I was getting at with this post.
Psalm 34:12-14
12 Whoever of you loves life
and desires to see many good days,
13 keep your tongue from evil
and your lips from speaking lies.
14 Turn from evil and do good;
seek peace and pursue it.
All verses sited are from the NIV (Yes, not typically my first choice of translation, but for this message I think all versions would still ring true.)
1 Peter 4:10
Each one should use whatever gift he has received to serve others, faithfully administering God's grace in its various forms.
Labels: blogging, chores, chronic illness, communication, doctor, To do list